Asking for your prayers today. Faith is suffering from stomach bloating and bleeding ulcers, most likely the combined result of irritation from the feeding tube and prolonged use of one of her medications. We have taken her to the emergency room once, but we have decided not to take extreme measures to treat her (ie. surgery). I am trying to let her stomach rest as much as possible and giving her acid blockers. I am doing my best to keep her comfortable and diligently praying that God will intervene. Faith is wrapped up snuggly in her blanky and has been opening her eyes and blinking --not something that we see very often. I hope you'll keep us in prayer today. Thanks for checking in; I'll update you soon.
My name is Myah and this is the story of my baby girl and our journey with anencephaly.
At my 19-week ultrasound, I was told that something was wrong with my baby's head. The doctor said that my baby had no brain. I'm sure most people wouldn't have even considered her to be alive. I was told that I could safely continue my pregnancy and allow her to die naturally, or I could induce labour and terminate the pregnancy. I chose to carry my baby to term for one simple reason: love. In my eyes there was no decision to be made. I had nothing but love and high hopes for her, and I named her Faith Hope. I cherished every moment of the pregnancy, and for five months we hoped and prayed. Then to everyone's surprise, we were blessed with 3 months and 4 days with Faith before she went to Heaven. She was the sweetest little girl... so beautiful and so full of life. I feel so blessed to be her mother.
I created this blog 10 weeks before my daughter was born. The posts here are very personal, emotional, brutally honest, and at times ungraceful. It's not easy for me to share so much of our life with the world. But it is my hope that by sharing our story, God will be glorified for all He has done for us. I also hope that this blog will reach other moms out there who are facing the same prenatal diagnosis that I did.
Our doctors firmly believed that Faith would never achieve consciousness and would likely not survive for more than a few seconds or minutes after birth. They didn't understand how she was thriving for all those weeks: how she was smiling, cooing, crying, drinking milk, breathing on her own, resisting infection, and responding to her surroundings. It is possible --all things are possible with God.