Saturday, December 19, 2009
Thursday, November 19, 2009
Wednesday, November 11, 2009
I miss my baby so much... It's hard to believe that it's been less than six months since the Lord called Faithy home. It seems like it's been so, so long since I last held her. It is hard, but I am so thankful for the 53 weeks that she spent here on earth. That's right, 53 weeks: 40 weeks in my belly and 13 in my arms. One year and seven days. What a blessing! It went by so fast --too fast. God knows I would do it all over again if I could.
Some people tell me that I'm strong, but if they knew the truth, they would know that I have all the strength of a baby bird with one broken wing. I am not strong, but my God is strong. His love is strong. He gives me the peace and joy to carry on. And He comforts me with these words:
"Do not let your hearts be troubled. Trust in God; trust also in me. In my Father's house are many rooms; if it were not so, I would have told you. I am going there to prepare a place for you. And if I go and prepare a place for you, I will come back and take you to be with me that you also may be where I am. You know the way to the place where I am going."
Thomas said to him, "Lord, we don't know where you are going, so how can we know the way?"
Jesus answered, "I am the way and the truth and the life. No one comes to the Father except through me. If you really knew me, you would know my Father as well. From now on, you do know him and have seen him."
Monday, October 19, 2009
Saturday, September 19, 2009
Tuesday, September 8, 2009
Wednesday, September 2, 2009
And your mommy was the happiest that she had ever been!
Tuesday, September 1, 2009
Wednesday, August 19, 2009
Thursday, August 6, 2009
Saturday, July 25, 2009
Wednesday, July 22, 2009
Sunday, July 19, 2009
Friday, June 19, 2009
Wednesday, June 17, 2009
Friday, June 12, 2009
Tuesday, June 9, 2009
First kiss from mommy (just born)
Grampa taking a video (evening of her birthday)
She used to pull her own arm out of her sleeve for me. Grammy and I were trying to catch it on video. (3 weeks, 2 days old)
Wednesday, June 3, 2009
Friday, May 29, 2009
Tuesday, May 26, 2009
Mommy and Faith (3 days old)
"Wali" (3 days old)
My hungy baby (3 days old)
Very hungry baby... (5 days old)
Having some lunch (5 days old)
Sunday, May 24, 2009
Mommy and feisty Faith
We spent the night holding Faith and reliving some of the wonderful memories captured of her on video. I will never get over her cuteness... her sweet little voice and all her little facial expressions, her feisty personality, the way she hummed to herself when sucking on her soukie... the way she looked like a baby bird whenever she would suck in her bottom lip, the little dip between her bottom lip and her chin, the way she would route around and suck on mommy's nose, her big exaggerated sneezes, all her smiles and grins... I am convinced that she was the most adorable little girl there ever was. I just keep watching the "Kisses" video over and over again. It never gets old. I will be posting many more photos and videos of Faith in the coming days and weeks... I'm sure it will be a huge comfort for me. I am so grateful for all the time I had with Faith and for all the photos and videos and for the memories we shared. And I can't wait to see her again... I don't know how she could get any cuter but I'm sure she is even more beautiful now that she is living it up in Heaven.
Saturday, May 23, 2009
Thank you all for your prayers.
Tuesday, May 19, 2009
Saturday, May 16, 2009
Wednesday, May 13, 2009
Tuesday, May 12, 2009
Wednesday, May 6, 2009
Sunday, May 3, 2009
Faith is finally starting to feel better after a few days of withdrawals from an attempt to lower her Prednisolone. I guess this ween is going to take longer than we thought! But the main thing is that she is comfortable. Check out the cute sweater my aunt made for Faith :) I like the pointy hood hehe... hope everyone is having a good weekend. Thanks for checking in!
Saturday, April 25, 2009
Last night we took our first stroll ever :) It was such a beautiful evening. Plus sixteen degrees, sunny, no wind. The perfect weather... I snapped a few photos of course. I am loving this Winnie the Poo travel system! It's like a cozy little bed on wheels. I've been rolling her around the house in it too lol... she loves it.
Friday, April 24, 2009
Thursday, April 23, 2009
It might surprise you to know that Faith is capable of taking milk by mouth. She went without a tube for the first 25 days of her life. A tube feed was inserted when she lost too much weight as a result of not getting enough milk. It takes more effort for her to coordinated her sucking and swallowing than most babies, and she tired before getting enough. She also has a partial cleft palate and that makes eating more difficult too. It doesn't mean that she cannot eat on her own, but rather, she was not eating enough. Many babies with special conditions need feeding tubes in order to get their required intake. They are often just temporary. The tube is a very soft, flexible plastic and does not cause discomfort. Faith makes more of a fuss when I wipe her face then when her tube is inserted! I think she is doing really well, all things considered.
Tuesday, April 21, 2009
Sunday, April 19, 2009
We're having a beautiful weekend over here... hopefully I'll get my hands on a stroller soon so we can start getting out for walks. Faith has been frisky lately, as you can tell by the video :) She's getting nice and chubby again and she has a lot more energy. Faith isn't completely over her cold but I think she's feeling a lot better now. She has been more wheezy since getting this cold, so I've had to increase her Prednisolone again (which I was trying to ween her off of). But as you can see, she is doing fairly well! I'm so excited about her turning 2 months old...
Grammy and I have done her last 2 dressing changes by ourselves, which is something we never thought we could or would do. It takes us a bit of time, but we're doing ok with it. I'm the one who takes off her old bandage and cleans everything and applies the new dressing, and my mom does the preparation and holds Faith in a sitting position while I work away, and she rolls the gauze around (something I think she'd be better at than me). So we have a system down... it's just a matter of getting used to that routine and getting more comfortable with it each time we do it. I'm happy that we have tomorrow off! We're doing it every second day now.
A friend I met through an online anencephaly support forum, PJ, recently had her baby boy. Baby Seth was born on Thursday morning and passed away later that evening. PJ must be dealing with a lot right now, as she's also recovering from her c-section. I cannot even imagine what she is going through... Please keep her and her family in prayer. http://www.babysethryan.blogspot.com/
Thanks for checking in... I'll try to post again real soon!
Tuesday, April 14, 2009
Faith is 6 pounds & 8 ounces today... she's almost back to her birth weight! And that is saying a lot because she was a really chubby baby when she was born (she had 3 rolls on her thighs alone). Faith only weighed 5 pounds, 4 ounces on the day she had her tube feed inserted, so this is a big improvement. She's looking great :)