Faith is still very weezy and working hard to breathe. Her lungs sound very constricted, but I'm not really sure what the problem is or what caused it... it could have been aspiration from before her feeding tube was inserted or the tube could have started it. I wish I knew what was going on with her lungs. I hope she doesn't have an infection. I've been giving her Motrin every 6 hours, so there wouldn't likely be a fever to indicate an infection if she did have one. I don't think this is normal decline, it seems more like something got into her lungs. Right now we are doing everything we can to treat the symptoms (within reason... it's not like we're going to admit her to the hospital), but until we know the root cause, there's not much we can do to solve the problem. I'm trying to relax but you know... it's hard to relax when your baby is having trouble breathing. Well I should go now, but just wanted to post a quick update on how things are going. Thanks for checking in!
My name is Myah and this is the story of my baby girl and our journey with anencephaly.
At my 19-week ultrasound, I was told that something was wrong with my baby's head. The doctor said that my baby had no brain. I'm sure most people wouldn't have even considered her to be alive. I was told that I could safely continue my pregnancy and allow her to die naturally, or I could induce labour and terminate the pregnancy. I chose to carry my baby to term for one simple reason: love. In my eyes there was no decision to be made. I had nothing but love and high hopes for her, and I named her Faith Hope. I cherished every moment of the pregnancy, and for five months we hoped and prayed. Then to everyone's surprise, we were blessed with 3 months and 4 days with Faith before she went to Heaven. She was the sweetest little girl... so beautiful and so full of life. I feel so blessed to be her mother.
I created this blog 10 weeks before my daughter was born. The posts here are very personal, emotional, brutally honest, and at times ungraceful. It's not easy for me to share so much of our life with the world. But it is my hope that by sharing our story, God will be glorified for all He has done for us. I also hope that this blog will reach other moms out there who are facing the same prenatal diagnosis that I did.
Our doctors firmly believed that Faith would never achieve consciousness and would likely not survive for more than a few seconds or minutes after birth. They didn't understand how she was thriving for all those weeks: how she was smiling, cooing, crying, drinking milk, breathing on her own, resisting infection, and responding to her surroundings. It is possible --all things are possible with God.