My little girl turns 13 days old today :) She slept through the night last night and was too tired to take any milk, but thankfully she had a big meal around 8pm before we went to bed. I keep trying to feed her every 2 or 3 hours but she's too tired. I managed to get an ounce or so into her today, but that's all she's had since 8 o'clock last night. Hopefully she'll come around soon and have a couple meals before her dressing change today. Oh yeah... I keep forgetting to tell you about our recent discovery. It turns out that Faith can hear! When her bandage was off the other day, she startled to the sound of a package being torn open. When I yelled really loudly for my mom the other day Faith started to cry. And yesterday she woke up right when my dog started barking. So we are fairly certain that she is able to hear :) Anyways, I think we're going to lay down for a little nap. Mommy's getting tired... thanks for checking in!
My name is Myah and this is the story of my baby girl and our journey with anencephaly.
At my 19-week ultrasound, I was told that something was wrong with my baby's head. The doctor said that my baby had no brain. I'm sure most people wouldn't have even considered her to be alive. I was told that I could safely continue my pregnancy and allow her to die naturally, or I could induce labour and terminate the pregnancy. I chose to carry my baby to term for one simple reason: love. In my eyes there was no decision to be made. I had nothing but love and high hopes for her, and I named her Faith Hope. I cherished every moment of the pregnancy, and for five months we hoped and prayed. Then to everyone's surprise, we were blessed with 3 months and 4 days with Faith before she went to Heaven. She was the sweetest little girl... so beautiful and so full of life. I feel so blessed to be her mother.
I created this blog 10 weeks before my daughter was born. The posts here are very personal, emotional, brutally honest, and at times ungraceful. It's not easy for me to share so much of our life with the world. But it is my hope that by sharing our story, God will be glorified for all He has done for us. I also hope that this blog will reach other moms out there who are facing the same prenatal diagnosis that I did.
Our doctors firmly believed that Faith would never achieve consciousness and would likely not survive for more than a few seconds or minutes after birth. They didn't understand how she was thriving for all those weeks: how she was smiling, cooing, crying, drinking milk, breathing on her own, resisting infection, and responding to her surroundings. It is possible --all things are possible with God.