Well, we're into the double digits now :) My sweetie pie turned 10 days old today. It looks like that umbilical cord could fall off any day now. Her dressing change went much better today, although it still tuckered her out... she usually doesn't eat (or do anything but sleep) for several hours after her dressing change, so she only had two feedings today. Her last meal was around noon and here we are at 10pm and she still won't eat... she's just too sleepy. Yesterday her dressing change was very stressful for both of us and she didnt eat for about 12 hours afterwards. But I'm hoping she'll wake up with an appetite soon. Mommy's got lots of milk ready when she does. It always makes me happy and relieved when she finally comes around and has a big meal. Her colour is looking pretty good today. I think the UV light therapy may be helping. Well, that and lots of prayer of course. Okay, we're off to bed... hopefully my little girl won't sleep through the night again and will wake up to eat soon. Tomorrow Grammy is going back to work and I'll be on my own for the first time since Faith was born. I better get some rest. Thanks for checking in :)
My name is Myah and this is the story of my baby girl and our journey with anencephaly.
At my 19-week ultrasound, I was told that something was wrong with my baby's head. The doctor said that my baby had no brain. I'm sure most people wouldn't have even considered her to be alive. I was told that I could safely continue my pregnancy and allow her to die naturally, or I could induce labour and terminate the pregnancy. I chose to carry my baby to term for one simple reason: love. In my eyes there was no decision to be made. I had nothing but love and high hopes for her, and I named her Faith Hope. I cherished every moment of the pregnancy, and for five months we hoped and prayed. Then to everyone's surprise, we were blessed with 3 months and 4 days with Faith before she went to Heaven. She was the sweetest little girl... so beautiful and so full of life. I feel so blessed to be her mother.
I created this blog 10 weeks before my daughter was born. The posts here are very personal, emotional, brutally honest, and at times ungraceful. It's not easy for me to share so much of our life with the world. But it is my hope that by sharing our story, God will be glorified for all He has done for us. I also hope that this blog will reach other moms out there who are facing the same prenatal diagnosis that I did.
Our doctors firmly believed that Faith would never achieve consciousness and would likely not survive for more than a few seconds or minutes after birth. They didn't understand how she was thriving for all those weeks: how she was smiling, cooing, crying, drinking milk, breathing on her own, resisting infection, and responding to her surroundings. It is possible --all things are possible with God.