Well technically it's now Wednesday, so Faith will be turning 20 days old today :) But since I haven't gone to bed yet, I'm going to pretend it's still Tuesday. It was really beautiful out today, so I took Faith outside for some fresh air. We went for our first walk :) I don't have a stroller, but I bundled her up close to me in that baby wrap, which might actually be better than a stroller this time of year. My body heat kept her plenty warm. Oh, and I guess strollers aren't very good for walks down on the marsh! Faith is doing very well. She is a nice healthy pink colour today. And she is looking prettier everyday, she really is. I don't know if I ever mentioned it before, but apart from a saline dressing on her head (which is changed once a day) Faith is living a completely normal life. It's quite miraculous, considering she was diagnosed with having "no brain." She is not only surviving, but seems to be thriving. And contrary to pretty much everything that the medical community believes about anencephaly, Faith is functioning at the same level as any "normal" baby of her age. In fact, she seems to be a little more advanced for her age. You don't have to take my word for it... I have hundreds of videos to prove it. And no, this wasn't a misdiagnosis... I have been asked that before. The only error here is the false information that doctors are being taught about anencephaly in med schools. They ought to open their minds and their eyes. Well, we should be going to bed now. Thanks for checking in!
My name is Myah and this is the story of my baby girl and our journey with anencephaly.
At my 19-week ultrasound, I was told that something was wrong with my baby's head. The doctor said that my baby had no brain. I'm sure most people wouldn't have even considered her to be alive. I was told that I could safely continue my pregnancy and allow her to die naturally, or I could induce labour and terminate the pregnancy. I chose to carry my baby to term for one simple reason: love. In my eyes there was no decision to be made. I had nothing but love and high hopes for her, and I named her Faith Hope. I cherished every moment of the pregnancy, and for five months we hoped and prayed. Then to everyone's surprise, we were blessed with 3 months and 4 days with Faith before she went to Heaven. She was the sweetest little girl... so beautiful and so full of life. I feel so blessed to be her mother.
I created this blog 10 weeks before my daughter was born. The posts here are very personal, emotional, brutally honest, and at times ungraceful. It's not easy for me to share so much of our life with the world. But it is my hope that by sharing our story, God will be glorified for all He has done for us. I also hope that this blog will reach other moms out there who are facing the same prenatal diagnosis that I did.
Our doctors firmly believed that Faith would never achieve consciousness and would likely not survive for more than a few seconds or minutes after birth. They didn't understand how she was thriving for all those weeks: how she was smiling, cooing, crying, drinking milk, breathing on her own, resisting infection, and responding to her surroundings. It is possible --all things are possible with God.