Well, so far Faith seems to be tolerating the tube feed well. I am gradually increasing the amount of milk that she gets at each feeding, and so far we are up to 20mL every 3 hours. I'm increasing the amount a bit faster than the dietitian recommended, but I want to get up to 30mL q 3hrs as soon as possible, since that is the minimum fluid intake she needs to keep hydrated. Once we're up to 30mL then we can start working towards her recommended caloric intake, which is waaay more than she's been getting by syringe. In retrospect, I have no idea what I was thinking allowing her to lose so much weight before inserting a tube feed. I was trying to avoid a tube feed, but I should have been keeping a closer eye on how much milk she was actually getting. When they weighed her in trauma yesterday, she was only 5 pounds and 4 ounces (with her dressing, hat, and diaper on). I didn't realize how malnourished she was but I should have... kind of makes me feel stupid for not addressing this sooner. Anyway, I'm just relieved that the tube is in and Faith can get all the nourishment that her little body needs. Grammy bought a souckie for her to suck on during feedings if she wants to. Hopefully she likes it... I know she likes to suck on my finger. Oh, by the way... Faith's umbilical cord came off today! It's an innie :)
Here is a video that was taken on Saturday afternoon. It's just a random home video of me, Faith, and Grammy in the kitchen. Hope you like it...
My name is Myah and this is the story of my baby girl and our journey with anencephaly.
At my 19-week ultrasound, I was told that something was wrong with my baby's head. The doctor said that my baby had no brain. I'm sure most people wouldn't have even considered her to be alive. I was told that I could safely continue my pregnancy and allow her to die naturally, or I could induce labour and terminate the pregnancy. I chose to carry my baby to term for one simple reason: love. In my eyes there was no decision to be made. I had nothing but love and high hopes for her, and I named her Faith Hope. I cherished every moment of the pregnancy, and for five months we hoped and prayed. Then to everyone's surprise, we were blessed with 3 months and 4 days with Faith before she went to Heaven. She was the sweetest little girl... so beautiful and so full of life. I feel so blessed to be her mother.
I created this blog 10 weeks before my daughter was born. The posts here are very personal, emotional, brutally honest, and at times ungraceful. It's not easy for me to share so much of our life with the world. But it is my hope that by sharing our story, God will be glorified for all He has done for us. I also hope that this blog will reach other moms out there who are facing the same prenatal diagnosis that I did.
Our doctors firmly believed that Faith would never achieve consciousness and would likely not survive for more than a few seconds or minutes after birth. They didn't understand how she was thriving for all those weeks: how she was smiling, cooing, crying, drinking milk, breathing on her own, resisting infection, and responding to her surroundings. It is possible --all things are possible with God.